A manual for the CF patients and their families has been designed to provide cystic fibrosis-patients and their families a better understanding of the disease. This leaflet is part of a European initiative undertaken by the European Concerted Action for Cystic Fibrosis. The text is based on the manual of the World Health Organisation (WHO) and the International Cystic Fibrosis (Mucoviscidosis) Association (ICF(M)A). The manual includes the following topics:
- what is cystic fibrosis
- what happens in the lungs
- what happens in the pancreas
- when to suspect cystic fibrosis
- how is cystic fibrosis inherited from the parents
- to have a child with cystic fibrosis and to accept a child with cystic fibrosis
- treatment of cystic fibrosis
- hospital
- relatives and friends
- you are not alone
These leaflets are available in eighteen languages:
Arabic | Hindi | Polish |
Croatian | Hungarian | Russian |
Czech | Italian | Serbian |
English | Latvian | Slovak |
French | Lithuanian | Spanish |
German | Macedonian | Ukrainian |
We would like to thank the translators for all their efforts and cooperation: translation bureau of AstraZeneca Diagnostics, Milan Macek Jr., Katarina Stepankova, Adriana Zigova, Antonija Redovnikovic, Branko Simat, Jadranka Sertic, Zita Krumina, Dragica Radojkovic, Tatyana K. Kascheeva, Ludmila A. Livshits, Natalia V. Gryschenko, Krisztina Nemeth, Gyorgy Fekete, V. Kucinskas, A. Utkus, J. Kasnauskiene, K. Konciute, Michal Witt, Lucyna Majka, Mandulika Kabra, and Svetlana Koceva. Thank you to Orchid, Innogenetics, Nanogen and Solvay Pharmaceuticals for printing these manuals.